MISSION TO RAISE AWARENESS OF SARCOMA AND CLINICAL TRIAL FUNDING Research lagging for sarcoma, despite accounting for one third of adolescent cancer deaths
With
Associate Professor Jeremy Lewin, Medical Oncologist,
Peter MacCallum Cancer Centre & Medical Director,
Victorian Adolescent and Young Adult Cancer Service &
Research & Education Lead – Sarcoma, VCCC Alliance
Dr Vivek Bhadri,
Paediatric and Adolescent Medical Oncologist
Chris O’Brien Lifehouse & Westmead Public Hospital &
Board Director
Australia and New Zealand Sarcoma Association (ANZSA)
AUSTRALIAN HEALTH JOURNAL SEGMENT
Filmed in Sydney & Melbourne | September 2025
Sarcoma, a rare and aggressive cancer, remains the deadliest cancer for children and young adults, accounting for nearly one third (30%) of cancer-related deaths among those aged 15–24 and one tenth (10%) of those aged 0–14. Further, still severely under-diagnosed, sarcoma only accounts for one sixth (15%) of all cancer diagnoses in the 15 – 24 age group, and less than a tenth (8%) among children under 10.
Despite this, public awareness and research funding for sarcoma funding remain critically low, with sarcoma receiving just $4.6m in funding for research in 2018-2020 – compared to the tens of millions other cancers receive. Sarcoma gets only a tiny fraction of funding for research that more common cancers receive, despite having the same costs to conduct studies.
The lack of funding reflects long-term survival rates for sarcoma which remain concerningly low, at just a 50% 10-year survival rate, while five-year survival rates for common cancers such as prostate and breast cancer have increased to over 90% in the past four decades (96% and 92% respectively).
Accounting for just 1% of all adult cancer diagnoses, sarcomas are rare and complex cancers that form in bone, cartilage or soft tissue8. There are over 100 different subtypes of sarcoma, which each require their own diagnostic and treatment pathways, which is why continued research is essential to improving patient outcomes.
Research indicates sarcomas are misdiagnosed in nearly one third (30%) of cases, emphasising the importance of ongoing research to support diagnostic developments, alongside improvements in patient treatment and management pathways.
Source: Australian and New Zealand Sarcoma Association (ANZSA) media release 1 July 2025
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GP Health of The Nation
As Australia’s largest professional general practice organisation, the RACGP represents more than 43,000 members, including more than 24,000 Fellows who have completed specialist training (or its equivalent). These are the frontline GPs who treat almost 22 million patients across the country every year.
Each year the runs a survey across Australian Doctors. This year’s report reflects the experience of more than 1300 RACGP Fellows from across Australia. Despite this and other achievements, the share of total government healthcare spend for primary care is in decline.
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Australian Healthcare Week 2019: Pitch Fest Finalist Coviu
Telelheath startup company Coviu was a Pitch Fest Finalist at last week’s Australian Healthcare Week Expo in Sydney. The Coviu platform has been developed as an spinoff from CSIRO and allows healthcare businesses offer video consultations to their own patients. It differs from being just a ‘talking head’ platform that Skype or Zoom could offer, by providing clinical tools integrated within the app. Anne Dao spoke with Co-founder and CEO Silvia Pfeiffer about the company and platform’s journey to date and its longer term goals.
Coviu helps healtcare businesses by helping fit in more consultation during that day and reducing no-shows for appointments. Also given the nature of the dispersed population, the application reaches to rural and regional areas where patients are a long distance from their healthcare provider. The company is focused on the Australian market and aims to enter the US market next year
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Still seeking outcomes after 6th Stoma Appliance Scheme Schedule Review
50,000 Australians have undergone the trauma and challenge of having a stoma inserted. Whilst the Australian Government invests in the appliances and products they need through the Stoma Appliance Scheme (SAS), this list is dated and doesn’t include as many of the products available in other countries. A new report commissioned by the Stoma Industry Association (SIA) shows Australia lagging countries such as the United Kingdom, Canada and Spain in supporting ostomates (people with a stoma).
