THE ROLE OF GENOMIC SCREENING IN TRANSFORMING PUBLIC HEALTH Understanding ethical, legal & social impacts of genomic screening
With
Dr Jane Tiller, Ethical, Legal & Social Adviser,
Public Health Genomics, Monash University
PEOPLE IN HEALTH CARE SEGMENT
Filmed in Melbourne | July 2025
Dr Jane Tiller is a lawyer, genetic counsellor and public health researcher. She is Ethical, Legal & Social Adviser in Public Health Genomics at Monash University, and a National Health and Medical Research Council Investigator Grant holder. Jane is passionate about the use of genomics to prevent disease, and in delivering equitable access to preventive genetic information at the population level. She is co-lead of DNA Screen, a world-first study piloting the offer of preventive DNA screening to the Australian adult population. DNA Screen has tested over 10,000 young people for genetic high risk of medically actionable conditions such as cancer and heart disease, finding about 2% of participants had genetic high risk. Jane is leading efforts to secure Commonwealth Government funding to expand the DNA Screen program, with the eventual goal of the development of a public health population screening program for disease prevention based on high genetic risk.
Jane also focusses on identifying and addressing the ethical, legal and social barriers to public acceptability and uptake of genetic screening. She co-founded the Australian Genetic Non-Discrimination Working Group, and led a project from 2020-2023 about genetic discrimination in life insurance. Jane led significant advocacy efforts towards translating her research findings into real world policy change. She was instrumental in the Government’s 2024 announcement that it will legislate a total ban on the use of genetic results in life insurance underwriting. Jane’s work has been recognised through a number of competitive awards, including recently the prestigious 2024 Research Australia Advocacy Award.
Source: Supplied
You Might also like
-
New Generative AI and machine learning frontier on unused patient care data
Drawing from GE’s 125-year legacy in healthcare, Amit Yadav, CEO GE HealthCare ANZ is leading efforts to integrate AI into medical imaging devices and optimise workflow efficiencies. He stresses the importance of leveraging the vast amount of untapped healthcare data, with an emphasis on automating manual processes to enhance productivity. Additionally, his focus extends to utilising AI for workflow optimisation and ensuring compliance with local regulations and standards to prioritise safety.
-
LIVED EXPERIENCE: Spontaneous Coronary Artery Dissection (SCAD)
Jen O’Neill is a Social Work Program Manager and mother of two from the Central Coast, NSW.
At 36, she experienced her first spontaneous coronary artery dissection (SCAD) heart attack and has since survived two further SCADs before age 43.
-
Reducing patient accessibility barriers in the clinical setting
Hannah McPierzie is a globally respected presenter, disability advocate, and educator who offers a unique perspective on disability and communication. She lives with Neurofibromatosis Type 2, a rare degenerative condition, and has two auditory brainstem implants. After 15 years teaching in the disability sector, Hannah acquired disability herself in 2020, when life-saving surgery left her deafblind.