ADVOCATING FOR AUSTRALIAN CHILDREN LIVING WITH VISION IMPAIRMENT
Australian Childhood Vision Impairment Register
With
Dr Susan Silveira
Chief Investigator
Australian Childhood Vision Impairment Register, NextSense &
Program Director
Master of Disability Studies (Macquarie University), NextSense
AUSTRALIAN HEALTH JOURNAL SEGMENT
Filmed in Sydney | June 2025
The Australian Childhood Vision Impairment Register (ACVIR), the first of its kind in Australia, captures uniquely Australian data which is used to improve services for children with vision impairment. The data is also available to researchers who work in the area of eye disease and disorders of vision.
Currently in Australia, we don’t know how many Australian children have vision impairment.
This makes it hard to plan for the services these children need, or to argue for research into preventing conditions which cause vision impairment.
NextSense Institute, in partnership with key Australian service providers, corporate donors, government departments and health professionals, has undertaken a major research project to develop and maintain an Australia-wide record of children with vision impairment.
This project is called the Australian Childhood Vision Impairment Register.
Australian Health Journal spoke with Dr Susan Silveira, Chief Investigator of the Register.
The Register collects accurate information on children who have been diagnosed by an ophthalmologist (eye doctor) with vision impairment.. This information is used to establish the number of children with vision impairment, the causes and level of vision impairment and any additional disabilities and health conditions these children have.
The Parent or guardian of a child, aged 0-18 years, who has been diagnosed by an ophthalmologist with vision impairment, are invited to join the Australian Childhood Vision Impairment Register.
The Australian Childhood Vision Impairment Register (ACVIR) is sponsored by NextSense with support from Guide Dogs, Vision Australia, low vision service providers and families of children with vision loss.
Source: Written by AUDIENCED sourced from NextSense website
-
Diary of a Paramedic in a primary health care clinic
Alecka Miles is a lecturer at Edith Cowan University and works as a paramedic in a multidisciplinary team at Dianella Family Medical Centre in Metropolitan Perth, Western Australia.
Community paramedic roles have a history in Australia, dating back to 2007 in New South Wales and followed by similar initiatives in South Australia and New Zealand. Alecka’s position emerged after she sought to evaluate how paramedics could integrate into general practice, ultimately leading to a job offer post-COVID lockdown in 2020. Her skills, particularly in cannulation, proved valuable as healthcare shifted towards primary care.
-
Australian Teletrial Program reaches significant milestones in trials and participants
Launched in 2022, the Australian Teletrial Program is an initiative designed to improve access to clinical trials for people living in regional and remote areas of Australia. It uses telemedicine and digital technologies to enable patients to participate in clinical trials without needing to travel long distances to major metropolitan centres, which can often be a barrier to participation for those in rural and isolated locations.
Recently Australian Health Journal met with Kaye Hewson, Director, Australian Teletrials Program, who spoke about the program’s recent achievements.
-
The Northernmost Pharmacist in Australia
Carli Berrill is a Co-Owner and Pharmacist of two pharmacies in Far North Queensland, including one on Thursday Island in Torres Strait, which is the most northern pharmacy in Australia.
Her role with the Thursday Island Pharmacy is to provide essential health and pharmacy services to 15 communities, including remote islands south of Papua New Guinea. The role for the community is the important ‘constant’ in being a trusted and familiar healthcare professional.
