FORUM FOSTERS DIALOGUE BETWEEN BREAST CANCER LIVED EXPERIENCE ADVOCATES, RESEARCHERS AND CLINICIANS Organised by the University of Queensland and Translational Research Institute
In October 2024, the Frazier Institute hosted an event dedicated to breast cancer advocacy and research, supported by TRI (Translational Research Institute), National Breast Cancer Foundation, PA Research Foundation, Health Translation Queensland, QUT and The University of Queensland Faculty of Medicine/Frazer Institute.
The key aim of the event co-organised by Associate Professor Joy Wolfram, Group Leader, Australian Institute for Bioengineering and Nanotechnology & School of Chemical Engineering, The University of Queensland was to foster dialogue between breast cancer lived experience advocates (consumers), researchers, and clinicians.
Co-organiser Associate Professor Fernando Guimaraes, Group Leader, Principal Research Fellow, Frazer Institute, The University of Queensland spoke to Australian Health Journal about the need to host the event and regularly engage with consumers.
Jo Maxwell, Principal Project Officer, Consumer and Community Involvement in Research Strategy and Support at The University of Queensland also spoke about the standards for consumer participation and collaboration adopted from the International Association for Public Participation (IAP2).
“IAP2 guides the researcher to structure consumer involvement all through the different stages of their research”, says Maxwell.
Associate Professor Cleola Anderiesz, Chief Executive Officer National Breast Cancer Foundation presented at the Forum and spoke to Australian Health Journal on the impact of engagement when communities, researchers and clinicians come together to hear about the latest research and discuss a future of better breast cancer care and outcomes.
The day long event was enlightening and impactful. The forum in Brisbane included a workshop focused on creating international connections between breast cancer consumers in Australia and the United States, with insights from leading breast cancer oncologists, clinicians, consumers, researchers, and community.
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Bridging the orthodontic knowledge gap
In recent years, the orthodontic sector has been growing rapidly due to success in B2C marketing and companies like Invisalign reaching the consumer, but there has also been a lack of knowledge sharing among general dental practitioners and specialists.
General dentists require mentorship and guidance from orthodontists to feel confident in providing orthodontic treatment to their patients, ultimately improving the quality of care in the community.
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LIVED EXPERIENCE: Complex Regional Pain Syndrome (CRPS)
Lachlan Thorpe has shared his experience of living with complex regional pain syndrome (CRPS), highlighting the profound impact the condition had on his life and the difference medical technology has made to his recovery.
In an interview with the Australian Health Journal, Thorpe explained that his CRPS developed following an ankle injury sustained while playing rugby for Sydney University Rugby Club in late 2024. After undergoing surgery and rehabilitation for the injury, he began experiencing severe pain, swelling and sensitivity despite there being no further orthopaedic damage.
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Launch of Australian Centre for Value-Based Health Care
The movement to value based healthcare across the industry in Australia, gained pace last month, with the Australian Healthcare & Hospitals Association launch of the Australian Centre for Value-Based Health Care.
