FORUM FOSTERS DIALOGUE BETWEEN BREAST CANCER LIVED EXPERIENCE ADVOCATES, RESEARCHERS AND CLINICIANS Organised by the University of Queensland and Translational Research Institute
In October 2024, the Frazier Institute hosted an event dedicated to breast cancer advocacy and research, supported by TRI (Translational Research Institute), National Breast Cancer Foundation, PA Research Foundation, Health Translation Queensland, QUT and The University of Queensland Faculty of Medicine/Frazer Institute.
The key aim of the event co-organised by Associate Professor Joy Wolfram, Group Leader, Australian Institute for Bioengineering and Nanotechnology & School of Chemical Engineering, The University of Queensland was to foster dialogue between breast cancer lived experience advocates (consumers), researchers, and clinicians.
Co-organiser Associate Professor Fernando Guimaraes, Group Leader, Principal Research Fellow, Frazer Institute, The University of Queensland spoke to Australian Health Journal about the need to host the event and regularly engage with consumers.
Jo Maxwell, Principal Project Officer, Consumer and Community Involvement in Research Strategy and Support at The University of Queensland also spoke about the standards for consumer participation and collaboration adopted from the International Association for Public Participation (IAP2).
“IAP2 guides the researcher to structure consumer involvement all through the different stages of their research”, says Maxwell.
Associate Professor Cleola Anderiesz, Chief Executive Officer National Breast Cancer Foundation presented at the Forum and spoke to Australian Health Journal on the impact of engagement when communities, researchers and clinicians come together to hear about the latest research and discuss a future of better breast cancer care and outcomes.
The day long event was enlightening and impactful. The forum in Brisbane included a workshop focused on creating international connections between breast cancer consumers in Australia and the United States, with insights from leading breast cancer oncologists, clinicians, consumers, researchers, and community.
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Health equity
For 30 years the Humpty Dumpty Foundation has worked to help bridge the gap that often exists between available resources and actual needs through the donation of paediatric medical equipment. Humpty, like many other charitable initiatives, began with a humble goal. Its Founder and Executive Chairman, Paul Francis OAM, together with Patron Ray Martin AM, set out to raise some money to paint the walls of the Children’s Ward at Royal North Shore Hospital.
To date more than 440 hospitals and health services have shared in over $85 million of essential and lifesaving medical equipment for sick and injured paediatric patients.
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New treatment options under investigation for pelvic organ prolapse
Dr Shayanti Mukherjee, Research Group Head, Translational Tissue Engineering at the with her team at Hudson Institute of Medical Research is developing new ways to prevent and potential cure pelvic organ prolapse (POP). The technology aims to ultimately lead to safer and more effective treatment for women with pelvic organ prolapse (POP) using a woman’s own stem cells to boost the effectiveness of a degradable mesh.
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Unleashing the potential of Paramedic skills and knowledge
According to a prominent paramedicine academic and researcher, paramedics have the potential to provide much-needed care in the community, changing the traditional healthcare model. Research points to paramedics having a wider healthcare workforce impact based on their ability to identify and fix problems 24/7.
Dr. Brendan Shannon is Head of Postgraduate Programs in the Department of Paramedicine at Monash University and a member of The Australasian College of Paramedicine. His interests including refining healthcare models, to ensure underserved communities receive requisite care. These alternative care pathways, like outreach programs, can work out of hospitals to provide care in underserved communities with social and complex chronic conditions.
