COURSE DEVELOPED FOR PEOPLE WITH INTELLECTUAL DISABILITY TO LEARN ABOUT RESEARCH Inclusive research used by Scope Australia to support advocacy for change through lived experience
With
Dr Caroline Hart,
Senior Research Officer
Scope Australia
Nell Buchanan,
Research Assistant
Scope Australia
PEOPLE IN HEALTH CARE SEGMENT
Filmed in Melbourne | March 2026
Scope Australia is one of the largest not-for-profit disability service providers in Australia, supporting thousands of people with complex intellectual, physical, and multiple disabilities.
They operate across Victoria and New South Wales across more than 425 service locations.
Scope’s research team developed a course about what research is and how to do research. Eight people with intellectual disability did the course. Five people took part in interviews to help Scope learn about the course and how to make it better.
In November 2025, A/Professor Stella Koritsas, Scope’s Head of Research, Dr Caroline Hart, Senior Research Officer, and Mimari Hartono, Research Assistant, presented findings from their research into co-research as part of this week’s Australasian Society for Intellectual Disability 2025 conference — research carried out “with” or “by” people with disability rather than “to”, “about” or “for” them, which is important because it helps the sector uphold the United Nations Conventions on the Rights of Persons with Disabilities principles of dignity, autonomy, and full participation.
The research found that the course had a positive impact on people that extended beyond their ability to do and lead research. People who participated said that they felt more confident after the course and learned new skills. They also said that they made friends. They told Scope’s researchers that the course could be better if more easy English was used. They also wanted to be able to get to know people before the course started.
Australian Health Journal spoke with Dr Caroline Hart and Research Assistant Nell Buchanan, who explained what the courses means for the sector, plus the knowledge and experiences gained.
Source: Supplied and adapted
You Might also like
-
Raising awareness, engagement and inclusion of Allied Health
Anita Hobson-Powell holds the position of Chief Allied Health Officer for the Australian Government within the Department of Health and Aged Care. With a background as an exercise physiologist and extensive experience leading allied health professional associations*, she has been entrusted with three main priorities. First, she aims to raise awareness about the significance of allied health professionals and their role in the healthcare system. This involves ensuring that decision makers and individuals engaging with health services understand the contributions of allied health professionals.
-
Sharing the same goals in value-based procurement
Value-based procurement (VBP) is a journey, not a sprint. It’s about putting the patient at the centre of quality affordable healthcare through changes in procurement practices for medical technologies. Patient outcomes drive value and sustainability, not just price. The bigger picture indicates that VBP will create system cost saving through benefitting patients, rather than trying to attain the reverse – a win-win outcome.
-
HIGHLIGHTS Consumers and communities as agents of health care change and improvement
Policymakers, health administrators and clinicians must learn and embrace new ways to harness the transformative role consumers, community members and carers can play. Conversely, consumers and communities need support, capability and capacity to engage as equals in policy, research, program and service design. This is necessary if are to be less technocratic and realise the vision where all members of society can live the best life possible.