COURSE DEVELOPED FOR PEOPLE WITH INTELLECTUAL DISABILITY TO LEARN ABOUT RESEARCH Inclusive research used by Scope Australia to support advocacy for change through lived experience
With
Dr Caroline Hart,
Senior Research Officer
Scope Australia
Nell Buchanan,
Research Assistant
Scope Australia
PEOPLE IN HEALTH CARE SEGMENT
Filmed in Melbourne | March 2026
Scope Australia is one of the largest not-for-profit disability service providers in Australia, supporting thousands of people with complex intellectual, physical, and multiple disabilities.
They operate across Victoria and New South Wales across more than 425 service locations.
Scope’s research team developed a course about what research is and how to do research. Eight people with intellectual disability did the course. Five people took part in interviews to help Scope learn about the course and how to make it better.
In November 2025, A/Professor Stella Koritsas, Scope’s Head of Research, Dr Caroline Hart, Senior Research Officer, and Mimari Hartono, Research Assistant, presented findings from their research into co-research as part of this week’s Australasian Society for Intellectual Disability 2025 conference — research carried out “with” or “by” people with disability rather than “to”, “about” or “for” them, which is important because it helps the sector uphold the United Nations Conventions on the Rights of Persons with Disabilities principles of dignity, autonomy, and full participation.
The research found that the course had a positive impact on people that extended beyond their ability to do and lead research. People who participated said that they felt more confident after the course and learned new skills. They also said that they made friends. They told Scope’s researchers that the course could be better if more easy English was used. They also wanted to be able to get to know people before the course started.
Australian Health Journal spoke with Dr Caroline Hart and Research Assistant Nell Buchanan, who explained what the courses means for the sector, plus the knowledge and experiences gained.
Source: Supplied and adapted
You Might also like
-
Evolution of the pharmacy tribe
The past 18 months has shown the strength of Australian pharmacies in ensuring accessibility, credibility and maintaining rapport with the community to administer COVID-19 vaccinations, handle electronic prescriptions and looking to play an integrated role in aged care.
-
Redefining diversity in clinical trials
Ensuring inclusion, diversity, equity and patient input in the development of novel drugs and medical devices has become well accepted in health care. However appropriate implementation of these elements has been a challenge for many. Only by implementing these conscious inputs can patient outcomes be improved and health disparities in marginalised groups be addressed.
Australian Health Journal spoke to Gillian Mason, Consumer and Community Involvement Lead at Hunter Medical Research Institute in Newcastle, NSW on this topic discussed at the recent ARCS Conference in Sydney.
-
Success in WA pilot to observe babies showing delays in social interaction & communication development
Inklings – led by The Kids Research Institute Australia – is a program for babies aged 6-18 months whose communications skills are developing differently to expected milestones. In early 2025 it has completed the first year of a pilot program.
At the time of filming (Nov 2024), Inklings has received more then 300 enquiries across WA and started to deliver services to 160 children, with almost 60 who have completed the program.